Say Hello to My Little Friend
We love the Ross family. This is 6 year old Presley. Her parents started Upside of Down, a nonprofit that sends many kids with Downs Syndrome to camp each year. Check them out!
10 of the Biggest Choices We Have Made
Here are 10 of the biggest Decisions we have made along the way:
- Go through the with pregnancy and birth – the doctor gave us the option to end the life of our daughter 30 weeks into pregnancy. We would have had to go to another state that offered late term abortions. We decided to let God and Kennady have their shot.
- Have the shunt surgery – The brain surgeon told us on Kennady’s birthday that we could have a surgery to release the fluid on her brain or that we could choose not to. Not having the surgery was a way of letting ‘nature take its course’. She would not live long with this scenario and could also have quite a bit of pain in the process. We decided to have the surgery.
- Our family would not slow down or be invalid – We saw many families with disabled members that were not active in their church, community, or life. We made a clear decision within the first months of Kennady’s life that we were not going to allow her disability to restrict our behavior. She was going to be the best dressed in our family. She would be a part of our life. The older she gets the harder this is. We hold each other accountable to keep this decision.
A little trip part 3
So the rest of the day was quite busy, as anyone who has done a clinic visit knows. People in and out asking you lots of questions. We always love our visit to TSRCH.
Our girl is growing and because of all the growth, we are going to be adding some extra calories to her daily feedings.
We also had adjustments made to her chair. She has been so wiggly lately we were having a tough time keeping her in place.
A little trip part 1
Here is a little piece of our journey to Dallas for our semi-annual visit to TSRCH hospital. We thought we would bring you along for the ride.
Couple Sues Because Their Child Was… Born.
A couple in Oregon are suing the hospital because their child was born with Down’s Syndrome. A CVS test during pregnancy said that the baby was healthy. Therefore, the couple went ahead with the birth. Now, after the baby was born with Down’s Syndrome, they are suing the hospital saying they would have aborted the child if they had known it had the birth defect.
FAQs for God
This post is written by my high school friend, Brandon Clay. In high school, we had our faith in God in common. We had no idea, 17 years later, we would share in suffering and new hope. This is a beautiful article on the honest questions we ask.
Our son, Knox Haddon, was born full term with no complications. Aside from being slightly underweight, nothing suggested he would live a different sort of life. A few weeks after his birth, our pediatrician noticed something strange in his eyes: there was no red reflex. It’s the same red-eye effect seen in some pictures – what normal eyes are supposed to do. Instead, Knox had infant cataracts which prevented the red reflex. Without surgery, the cataracts would obstruct his vision for the rest of his life.
We opted for the surgeries to save his sight. Two surgeries eventually turned into five surgeries to correct other complications with his eyes. The lenses were removed and he could only see with the help of contacts or glasses. All of this happened before his 6 month birthday.
But that wasn’t all.
What People are Saying