Say Hello to My Little Friend
We love the Ross family. This is 6 year old Presley. Her parents started Upside of Down, a nonprofit that sends many kids with Downs Syndrome to camp each year. Check them out!
10 of the Biggest Choices We Have Made
Here are 10 of the biggest Decisions we have made along the way:
- Go through the with pregnancy and birth – the doctor gave us the option to end the life of our daughter 30 weeks into pregnancy. We would have had to go to another state that offered late term abortions. We decided to let God and Kennady have their shot.
- Have the shunt surgery – The brain surgeon told us on Kennady’s birthday that we could have a surgery to release the fluid on her brain or that we could choose not to. Not having the surgery was a way of letting ‘nature take its course’. She would not live long with this scenario and could also have quite a bit of pain in the process. We decided to have the surgery.
- Our family would not slow down or be invalid – We saw many families with disabled members that were not active in their church, community, or life. We made a clear decision within the first months of Kennady’s life that we were not going to allow her disability to restrict our behavior. She was going to be the best dressed in our family. She would be a part of our life. The older she gets the harder this is. We hold each other accountable to keep this decision.
A little trip part 3
So the rest of the day was quite busy, as anyone who has done a clinic visit knows. People in and out asking you lots of questions. We always love our visit to TSRCH.
Our girl is growing and because of all the growth, we are going to be adding some extra calories to her daily feedings.
We also had adjustments made to her chair. She has been so wiggly lately we were having a tough time keeping her in place.
A little trip part 2
The beautiful Dallas skyline. We just arrived at the hospital. Kennady slept the whole way. This contraption hangs from the ceiling. It is so intriguing to the kids. We are about to eat lunch with another family who has a daughter with HPE.
A little trip part 1
Here is a little piece of our journey to Dallas for our semi-annual visit to TSRCH hospital. We thought we would bring you along for the ride.
What People are Saying